The Hidden Mothers

Background

Hyperemesis gravidarum (HG) is not regular pregnancy sickness as we know it.

It is a condition with extreme symptoms and effects. Common symptoms include prolonged periods of nausea, vomiting, lack of appetite leading to severe and rapid weight loss as well as dehydration. As you’ll read from the testimonies to come, medical attention is usually required.

The psychological impact of HG can be traumatic, preventing future pregnancy or in some instances leading to terminations and suicidal thoughts. In the UK, approximately 30,000 pregnancies per year suffer from HG.

In 2017 after the birth of my son and the relief of a safe delivery after surviving HG, I began to live my life post-pregnancy. Researching HG I was only too aware that the trauma I had experienced would take the decision for a second child away from me. To put myself through that again and not be able to be a mother to my son is an unbearable reality.

As a photographer I have always had an interest in the history of photography. There is an early Victorian style we now call Hidden Mother photography, where infants feature with the mother covered in fabric disguised as a piece of furniture. This was so they could hold the infant still to achieve an in-focus picture, but today we see quite a creepy outcome.

This visual metaphor of the mother being hidden became a true reflection of how I felt in pregnancy. I was hearing other women felt the same, which is how The Hidden Mothers came about. There are so many of us internationally who have experienced such similar treatment I felt compelled to tell our stories and to help raise awareness of the horrendous impact HG is having on people's lives. Compelled to shout ‘we cannot be hidden anymore!’

In the midst of HG and thereafter I didn't see anything that represented my reality of pregnancy. That special glow amongst pink and blue gender reveal balloons didn’t reflect the utter hell I experienced. Fair enough, pregnancy and parenting is more talked about today, and gone are the days of hiding bumps like they're a dirty secret. But what is being shared now needs to be honest and helpful, and not another area for expectant mothers to feel unheard and completely alienated from.

Early medical photography of pregnant women saw women treated like strange oddities through a male gaze; while naked, women were photographed with their faces covered. This was seen to keep the womens’ dignity intact whilst the physical experience of pregnancy was documented. 

As you’ll read, the shared experience of HG sufferers from medical professionals might as well have been to cover our face. No one was listening or seeing our struggle. Instead we were told what you’re feeling is good as it's a sign of a strong pregnancy - this is pregnancy!

We have to ask what message we’re sending to women that their welfare is so irrelevant even though nature has deemed us worthy of childbearing? Imagine if I visited a doctor while not pregnant and unable to eat, dehydrated, sensitive to light and generally feeling as if my body was shutting down while unsure if I could go on living like this. One would presume I would receive help beyond recommending ginger biscuits and Gaviscon.

So what happens to us the moment of confirmed pregnancy - why is the mothers’ health suddenly irrelevant? 

As a society, if pregnant women become ignored, what do we expect the effect to be for the unborn child's future when the message is that your mum's mental and physical health is unimportant? The fact is more needs to be done now. To put it bluntly, women and unborn babies are dying. In a society where help is possible, this just shouldn't be happening.

Making change

I couldn’t believe the response to my call out for women to take part in The Hidden Mothers. I had women of all ages from all over the world sending me their Hyperemesis Gravidarum stories just wanting to be heard. The trauma and suffering women are going through at the most important part of our lives is horrendous. I was all too aware that it wasn't possible to tell every story as important as they all are. So I set up @thehiddenmothers Instagram community so that we could share our stories and women could take their own Hidden Mothers selfie too.

The three day photoshoot took place at the very poignant Foundling Museum in London. The Museum tells the story of the UK’s first children’s charity and its first public art gallery – the outcome of a centuries-old project designed to care for and educate London’s most vulnerable children. And whose very own patron Her Royal Highness The Princess of Wales suffered with Hyperemesis herself throughout her pregnancies. I photographed eighteen women in total concealed under fabric to look like a piece of furniture and revealed so that their identity is seen and can’t be ignored.

I was truly honoured to tell the women sitters’ stories and take their portraits. It was humbling to hear how far some women traveled to take part. This showed how important this was to bravely share their experience through their involvement.

The Hidden Mothers book was produced and on display alongside selected photographic prints from the project for the first time at the Houses of Parliament in collaboration with Pregnancy Sickness Support. MP Sara Britcliffe and Minister for Women’s Health Strategy Maria Caulfield MP, spoke at the event for for Unveiling The Hidden Mothers: Empowering Change for Hyperemesis Sufferers.

The event held a spotlight on “The Hidden Mothers, a poignant and revealing initiative that showcases the real and often unseen struggles of women battling Hyperemesis. Through powerful photographs and narratives, the project illuminates the emotional and physical toll of this condition, challenging the prevailing dismissal and ignorance surrounding it.

Our goal is to transform perception into empathy and ignorance into action, thereby improving the support and treatment for those affected. We hope you will join us in this important conversation and be part of a movement that shapes a more empathetic and informed approach to women's health. Your presence will not only signify solidarity with Hyperemesis sufferers but also provide a unique opportunity to engage with experts and individuals with lived experience. This is a chance to gain first-hand insight into the challenges these women face, an understanding crucial for informed policymaking and advocacy.”

Maria Caulfield’s speech affirmed that “We are absolutely determined in the next 12 months to make progress” with HG specifically being put on the women’s health strategy. “This shows that government is taking this extremely seriously and we want to work hand in glove with you to better identify women who are affected and then help get through pregnancy”.

The Hidden Mothers first full public exhibition is currently in development, with an eye on a London venue in late 2024.

Photo of MP Maria Caulfield, CEO of PSS Charlotte Howden and MP Sara Britcliffe at Unveiling The Hidden Mothers: Empowering Change for Hyperemesis Sufferers

MP Maria Caulfield, CEO of PSS Charlotte Howden and MP Sara Britcliffe at Unveiling The Hidden Mothers: Empowering Change for Hyperemesis Sufferers